Citizens’ rights of access and transmission of personal health data: Implementation models and approaches

28 /Nov


  • DPD Salut

The European Health Data Space focuses on the rights of natural persons in relation to the primary use of their personal electronic health data: Article 3 of the proposed Recommendation focuses on these rights. 

This session will present and discuss different national and regional states-of-play and approaches to implementing Article 3 of the data space. Implementation by national or regional health systems entails the deployment of solutions – like those of the USA’s Blue Button – that can be accessed through mHealth apps. Once data is in people’s own hands, more options emerge that can support self-care and health research. Is a European version of the Blue Button the way forward?

Moderated by Matteo Melideo, Engineering Ingegneria Informatica SpA, Italy.


Claus Duedal Pedersen,, Denmark

Joan Guanyabens, Fundació TIC Salut Social, Catalonia, Spain