Citizens’ rights of access and transmission of personal health data: Implementation models and approaches
The European Health Data Space focuses on the rights of natural persons in relation to the primary use of their personal electronic health data: Article 3 of the proposed Recommendation focuses on these rights.
This session will present and discuss different national and regional states-of-play and approaches to implementing Article 3 of the data space. Implementation by national or regional health systems entails the deployment of solutions – like those of the USA’s Blue Button – that can be accessed through mHealth apps. Once data is in people’s own hands, more options emerge that can support self-care and health research. Is a European version of the Blue Button the way forward?
Moderated by Matteo Melideo, Engineering Ingegneria Informatica SpA, Italy.
Speakers
Claus Duedal Pedersen, Sundhed.dk, Denmark
Joan Guanyabens, Fundació TIC Salut Social, Catalonia, Spain
