xShare

  • Access of individuals to their health data in EEHRxF format.  
  • Implementing the xShare button on health portals and patient apps for the download of health data.  
  • Promoting research and innovation within the framework of the European Health Data Space (EHDS).
  • Ensuring the right to data portability as stipulated in the General Data Protection Regulation (GDPR).

Description

xSHARE (Expanding the European EHRxF to share and effectively use health data within the European Health Data Space)

will enable citizens to access their health data in EEHRxF format and download them through the xShare button, located on health portals and patient apps. This ensures people’s right to exercise data portability, as stipulated in the General Data Protection Regulation (GDPR).

xShare will also be a driver of research and innovation within the framework of the European Health Data Space (EHDS).

Co-funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or European Health and Digital Executive Agency (HADEA). Neither the European Union nor the granting authority can be held responsible for them.

 

Within the framework of this project, the following will be developed:

  1. Harmonized and common requirements and specifications, including FHIR implementation guides, tools, datasets, and educational support for key domains of the EEEHRxF.
  2. A set of common elements within the health information domains of the EEEHRxF applicable to the EHDS for the population and clinical research.
  3. A harmonized extension of IPS specifications to include health plans that can be used in research.
  4. Adoption of the xShare button in 8 European regions, including Catalonia, with a focus on data portability, EEEHRxF in public health and cross-border threats, and data access for research purposes.

The TIC Salut Social Foundation strategically participates on behalf of the Catalonia Health System and the Spanish Ministry of Health in all project activities.

 

Consortium

xSHARE it is performed by a 38 partners integrating its consortium:

 

  1. MEDCOM
  2. HL7 INTERNATIONAL FOUNDATION
  3. MEDIQ
  4. INTEGRATING THE HEALTHCARE ENTERPRISE-EUROPE AISBL
  5. EMPIRICA GESELLSCHAFT FUR KOMMUNIKATIONS UND TECHNOLOGIEFORSCHUNG MBH
  6. THE EUROPEAN INSTITUTE FOR INNOVATION THROUGH HEALTH DATA (I~HD)
  7. GNOMON PLIROPHORIKIS AE
  8. EUROPEAN HEALTH TELEMATICS ASSOCIATION (EHTEL)
  9. DNV
  10. IEEE TECHNOLOGY CENTRE GMBH
  11. BETTER STANDARDS FOR e-HEALTH B.V.
  12. SECRETARIA REGIONAL DA SAUDE
  13. DIGITALEUROPE AISBL
  14. CHARITE – UNIVERSITAETSMEDIZIN BERLIN
  15. IDRYMA TECHNOLOGIAS KAI EREVNAS
  16. ECHALLIANCE COMPANY
  17. ASSOCIACAO ISCTE CONHECIMENTO E INOVACAO – CENTRO DE VALORIZACAO E TRANSFERENCIA DE TECNOLOGIAS
  18. FUNDACIÓO TIC SALUT SOCIAL
  19.  UNINOVA-INSTITUTO DE DESENVOLVIMENTO DE NOVAS TECNOLOGIAS-ASSOCIACAO
  20.  TELEMEDICINE TECHNOLOGIES
  21.   CDISC EUROPE FOUNDATION
  22.  CINECA CONSORZIO INTERUNIVERSITARIO
  23.  ARINIMI ON BRIDG OU
  24.  ETHNIKI ARCHI ILEKTRONIKIS IGEIAS
  25.  ILEKTRONIKI DIAKYVERNISI KOINONIKISASFALISIS AE
  26.  FONDAZIONE TOSCANA GABRIELE MONASTERIO PER LA RICERCA MEDICA E DI SANITA PUBBLICA
  27.  DEPARTMENT OF HEALTH (IRELAND)
  28. SCIENSANO
  29. UNIVERSITAT DE VALENCIA
  30.  DATAWIZARD SRL
  31. European CRO Federation
  32.  MINISTERIO DE SANIDAD (ESPAÑA)
  33.  SANOFI-AVENTIS RECHERCHE & DEVELOPPEMENT
  34. CHILLY MAZARIN
  35.  SUNDHEDSDATASTYRELSEN
  36.  MEDTECH EUROPE
  37.  MINISTERIE VAN VOLKSGEZONDHEID, WELZIJN EN SPORT
  38. INTERNATIONAL HEALTH TERMINOLOGY STANDARDS DEVELOPMENT ORGANISATION (SNOMED)

Other information

Duration: 36 mesos.

Project starting date: 1 de desembre de 2023.

Programme: Horizon Europe.

Topic: HORIZON-HLTH-2023-IND-06-02 Expanding the European EHRxF to share and effectively use health data within the EHDS

Total budget: 7.999.882,50 €

TIC Salut Social budget: 171.875,00 €

Project’s website